Emily Kramer-Golinkoff is Co-Founder of Emily's Entourage, an innovative 501(c)3 foundation that accelerates research for new treatments and a cure for nonsense mutations of Cystic Fibrosis. She is also an internationally recognized patient advocate and speaker.
Named a White House Precision Medicine “Champion of Change,” Emily’s Entourage has awarded over $3.4 million in research grants since 2011 and led worldwide efforts to drive high-impact research and drug development on nonsense mutations of Cystic Fibrosis. The organization has been featured in national media outlets, including CNN.com, Time.com, People.com, and AOL.com.
Emily has a master’s degree in bioethics and certification in clinical ethics mediation from the University of Pennsylvania, where she also completed her undergraduate degree. She has given talks at The White House, TEDx, University of Pennsylvania's Annenberg School for Communication Commencement, Stanford University's Medicine X Conference, and more, and in 2016, she was named the recipient of the Global Genes Rare Champion of Hope for Advocacy Award.
2019 Health Datapalooza Presenter