Patient & Consumer Engagement

AcademyHealth is committed to supporting and fostering collaboration between consumers, patients, researchers and delivery systems leaders to improve the relevance and application of health services research. This section contains information on related programs as well as guidance and resources for researchers, patients and consumers.

Publication

Patient Centered Care Must Be Dynamic and Responsive

A physician, patient, caregiver and advocate offers her viewpoint on the barriers to patient centered care, including lack of understanding of the care giver role, insurance status, as well as bias, racism and social determinants of health.

Posted Sep 12, 2019

Topics Patient & Consumer Engagement Health Equity Hospitals & Health Systems

Publication

Patient Involvement Improves Research

A patient offers his viewpoint on what’s standing in the way of patient centered care in the U.S., emphasizing the need for patients and researchers to work together.

Posted Sep 12, 2019

Topics Patient & Consumer Engagement Hospitals & Health Systems

Publication

Literature Review Reveals Four Key Barriers to Patient Centered Care

Produced under the Optimizing Value in Health Care program, administered by AcademyHealth, this paper outlines the following barriers to patient centered care: missing information, inadequate trust, organizational culture, and alignment of incentives.

Posted Aug 27, 2019

Topics Patient & Consumer Engagement Hospitals & Health Systems

Blog Post

Supporting Patient-Centered Research

AcademyHealth recently submitted comments supporting PCORI reauthorization, in this post, guest author, Dr. Terri Finkel highlights the value of PCORI-supported network PEDSnet.

Posted Jun 18, 2019 By Terri H. Finkel, M.D., Ph.D.

Topics Patient & Consumer Engagement

Publication

The Role of Medicaid Engagement and Education Efforts in Improving Delivery of PrEP Intervention Services

This issue brief, commissioned by AcademyHealth, identifies ways the Medicaid program can educate patients and providers to improve the use of PrEP medication and clinical services.

Posted Jun 07, 2019

Topics Patient & Consumer Engagement Insurance, Medicare & Medicaid Delivering Better Care Public & Population Health

Blog Post

Culture of Health Innovator’s Work on Black Mothers’ Health Featured in Health Affairs

Joia Crear-Perry’s work on improving black mothers’ health was voted best Snapshot of Innovation at the March 2019 Sharing Knowledge to Build a Culture of Health conference held by the Robert Wood Johnson Foundation in collaboration with AcademyHealth.

Posted Jun 7, 2019 By Lauren Adams, M.A.

Topics Patient & Consumer Engagement Health Equity Delivering Better Care

Blog Post

Nothing About Us Without Us: How Can Researchers Respond to Teens’ Concerns about Mental Health?

In the second of a two-part blog series marking National Children’s Mental Health Awareness Week, a group of researchers respond to youth advocates’ thoughts on the mental health needs of adolescents.

Posted May 9, 2019 By Denise Dougherty, Ph.D., Elizabeth Cope, Ph.D., M.P.H., Richard L. Wittenberg, Lisa Simpson, M.B., B.Ch., M.P.H., FAAP

Topics Patient & Consumer Engagement Delivering Better Care Access to Care

Blog Post

Building a Safety Net for Teen Mental Health: Youth Advocate Perspectives

In the first of a two-part blog series marking National Children’s Mental Health Awareness Week, a group of youth advocates share their thoughts on the mental health needs of adolescents and how researchers can support them.

Posted May 6, 2019 By Karen Wolk Feinstein, Ph.D., Liam Boyd, Abby Dischner, Emma Dischner, Ayala Rosenthal

Topics Patient & Consumer Engagement Delivering Better Care Access to Care

Past Event

Delivery of Patient Centered Care in the U.S. Health Care System: What is standing in its way?

With support from the Robert Wood Johnson Foundation, AcademyHealth hosted this invitational meeting of experts on the barriers to patient centered care.

Date & Time May 2-3, 2019

Topics Patient & Consumer Engagement Hospitals & Health Systems

Blog Post

Engaging Consumers and Patients to Accelerate Alternative Payment Models and Benefit Designs

Anne Gauthier and Karen Adams of MITRE, an AcademyHealth organizational affiliate, highlight opportunities to improve care quality and reduce cost by involving consumers in designing alternative payment models.

Posted Apr 30, 2019 By Anne K. Gauthier, M.S. , Karen Adams

Topics Patient & Consumer Engagement Paying for Care Costs & Payments Membership National Health Policy Conference