AcademyHealth is pleased to announce that Health Datapalooza 2018 meets Patients Included criteria. The Patients Included charter provides conference organizers with a means of demonstrating that their events are committed to incorporating the experience of patients as experts in living with their condition while ensuring they are neither excluded nor exploited. Patients Included status is self-assessed. A conference successfully meeting all five of the charter's clauses may accredit itself as a Patients Included event. Health Datapalooza 2018 fulfills the five Patients Included charter clauses in the following ways:
Patients or caregivers with experience relevant to the conference's central theme actively participate in the design and planning of the event, including the selection of themes, topics and speakers.
Patient representatives serve on the meeting Steering Committee, provided feedback on several aspects of the meeting content and structure, and assisted in peer review of abstracts submitted to the conference.
Patients or caregivers with experience of the issues addressed by the event participate in its delivery, and appear in its physical audience.
Patients, consumers, and caregivers were invited to submit to the call for abstracts and are named as key audiences for the event. The patient experience will be specifically featured in one of our coveted main stage plenaries, and other track sessions are relevant, and of interest to, patient and consumer audiences.
Travel and accommodation expenses for patients or caregivers participating in the advertised program are paid in full, in advance. Scholarships are provided by the conference organizers to allow patients or caregivers affected by the relevant issues to attend as delegates.
Travel and accommodation costs of all patient speakers will be paid in full, in advance. In addition, scholarships are available for patient and consumer advocates involved in various aspects of meeting. A limited number of complimentary registrations are available for patients who would benefit from participating in the conference.
The disability requirements of participants are accommodated. All applicable sessions, breakouts, ancillary meetings, and other program elements are open to patient delegates.
Disability accommodations are available for the conference, as they are for all AcademyHealth meetings.
Access for virtual participants is facilitated, with free streaming video provided online wherever possible.
Access for virtual participation via streaming video is provided. Health Datapalooza will have a very active social media presence, and a meeting Twitter hashtag #hdpalooza through which we will provide updates and invite patient and consumer engagement.