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Raj Sabharwal
Committee Member, Staff

Raj Sabharwal, M.P.H.

Director - AcademyHealth

Mr. Sabharwal is the Director of Strategic Alliances at AcademyHealth, where he works on projects that support the development of an evidence infrastructure for health and health care, with an emphasis on the inclusion of multiple stakeholder perspectives. His core areas of interest/project activities include broader use of interoperable health information technology (Health IT) systems, data governance and privacy, patient centered outcomes research, and the development of data registries.  In addition, Mr. Sabharwal serves as the staff lead for AcademyHealth’s new Corporate Council and actively seeks partnerships and collaborations for AcademyHealth and its members with private sector entities, including delivery systems, life-sciences companies, payers, and Health IT/data analytic firms. 

Prior to joining AcademyHealth, Mr. Sabharwal served as a Senior Project Manager at the Center for Medical Technology Policy (CMTP). Prior to CMTP, Mr. Sabharwal worked at Avalere Health as a Manager in their Center for Evidence-Based Medicine. At Avalere, he provided life sciences industry clients with research, analytic, and project management support on comparative effectiveness and quality improvement activities. Previous to Avalere, Mr. Sabharwal served as a Senior Researcher at the Association of American Medical Colleges (AAMC) Center for Physician Workforce Studies, where his research interests included the study of medical student career and specialty choices, indebtedness among health professionals, and physician mal-distribution. Mr. Sabharwal received his master's in public health with a concentration in epidemiology from the University of Alabama-Birmingham School of Public Health and a bachelor's degree from Louisiana State University.

Authored by Raj Sabharwal, M.P.H.

Program

Community Health Peer Learning Program

From June 2015 to July 2017, the Community Health Peer Learning (CHP) Program built community capacity to advance progress toward population health improvements through the expanded capture, sharing, and use of electronic health data from diverse sectors.

In partnership with the Office of the National Coordinator for Health Information Technology, AcademyHealth’s Community Health Peer Learning (CHP) Program engaged 15 communities in a peer learning collaborative to identify data solutions, accelerate local progress, and disseminate best practices and lessons learned.

Collaborating with NORC at the University of Chicago, and the National Partnership for Women & Families, and with guidance from Key Advisors, the CHP Program helped participating communities to inform national strategy and align with other delivery system reform efforts driving toward better care, smarter spending, and healthier people.

The communities are profiled here, and a full list of CHP products is below; notable resources include:

For the Field

Toward Data-Driven, Cross-Sector, and Community-Led Transformation: An Environmental Scan of Select Programs
A scan of 17 national and regional programs supporting local and cross-sector collaborations focused on population health improvement at the community level.

"Notes from the Field" Blog Series
This collection of blog posts catalogue milestones in AcademyHealth’s Community Health Peer Learning Program as well as lessons learned along the way from a broad swath of community-led data sharing initiatives to improve population health.

For Communities

Community Profiles
The 15 CHP communities worked to link critical information from within and outside of health care to address challenges ranging from pediatric asthma to at-risk individuals facing housing insecurity.

Community Learning Guide Series
This learning guide series highlights practical experiences, key lessons, and insights from five communities about addressing population health management challenges through improved capture, sharing, and use of electronic health data.

Community Bright Spots Series
This series of profiles highlights useful insights from three communities all working to advance progress toward population health improvements through the expanded capture, sharing, and use of electronic health data from diverse sectors.

Ongoing Work

AcademyHealth continues to support this work through another learning collaborative called All In: Data for Community Health. Learn more about All In’s efforts to support and accelerate data-driven, community-led, and cross-sector collaboration – and get involved here.

Program

Registry of Patient Registries

​Patient registries offer significant opportunities for conducting clinical research.

AHRQ logo

In December 2012, the Agency for Healthcare Research and Quality (AHRQ) launched the Registry of Patient Registries (RoPR), which is a database of existing patient registries that was designed with extensive stakeholder participation to promote collaboration, reduce redundancy, and improve transparency in registry-based research. In partnership with AHRQ, L&M Policy Research, and Truven Health Analytics, AcademyHealth facilitates implementation of RoPR and its related projects, with a particular focus on developing a virtual Community of Practice (CoP) to facilitate discussion of relevant issues related to registry design and use of registry data among diverse stakeholders.

Sponsor/Funder/Partner

Training & Resources

  • 2014 Registries for Evaluating Patient Outcomes: A User's Guide: 3rd Edition
    This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care.
     
  • 2014 Outcome Measure Framework (OMF) Design Document
    Because standardized outcome measures do not exist for most condition areas, clinical studies often use different outcome measures or different definitions for the same outcome measures. The use of different definitions can have a substantial impact on study findings and introduce challenges when comparing or aggregating data across studies, leading to uncertainty when interpreting study findings in the context of existing evidence. The Outcome Measures Framework (OMF) provides a model and tool for the collection and display of information on outcome measures currently being used in patient registries, supports searching for and comparing identified outcome measures, and minimizes user burden. Further, as a content model, the OMF can serve as a standard approach to developing outcome measurement systems in multiple disease areas. The OMF tool is intended to collect and display information on outcome measures used in patient registries, with the goals of characterizing what registries currently collect and supporting long-term efforts to standardize outcome measures.

Pilots & Programs

Web-Based Collaborative Registries Forum
AcademyHealth is leading the development of an online Community of Practice for RoPR, the primary objective of which is to facilitate discussion of relevant issues related to registry design and use of registry data, among individual or groups that are currently involved with registries, as well as those whom may be interested in creating or using registries. The Web-forum also offers a repository of resources that are relevant for a range of registry producers and end-users.

Harmonization of Outcomes Using the Outcome Measures Framework

The RoPR project is also seeking to harmonize clinical definitions and outcome measures used in patient registries across five clinical areas, using the RoPR Outcome Measures Framework (OMF). The OMF is a conceptual model for classifying existing outcome measures that are relevant to patients and providers across most clinical conditions. Harmonizing these outcome measures is the key to improving the ability of registries to connect to other health IT systems. Through extensive stakeholder engagement, the harmonization will be conducted within select five clinical areas, and for each we will, 1) compare outcome measures to identify areas of harmonization; 2) work toward harmonization at series of in-person and web meetings; 3) produce common library of outcome measures for public comment; and 4) finalize library with feedback and post for public use.