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Staff

Beth Johnson, M.P.H.

Senior Manager - AcademyHealth

Beth Johnson, M.P.H. is a senior manager for the Research and Education in HSR team, managing a portfolio of programs focused on providing infrastructure, training, and technical assistance to researchers, communities, and networks aiming to use electronic health data and health IT to improve patient care and population health. Ms. Johnson serves as the program manager for the Community Health Peer Learning Program, funded by the Office of the National Coordinator for Health Information Technology (ONC). She also manages the development and design of online initiatives for the Electronic Data Methods (EDM) Forum, funded by the Agency for Healthcare Research and Quality. Ms. Johnson co-leads AcademyHealth's Center for Diversity, Inclusion, and Minority Engagement.

Prior to joining AcademyHealth, Ms. Johnson worked as the Health Policy Research Fellow for the National Medical Association's W. Montague Cobb Health Institute. Her main responsibilities included co-planning seminars on health disparities and cultural competency, and suppoting the design and dissemination of two online surveys - one focusing on the prevalence of cultural competency training and education among health care providers, and the other assessing provider access to health information technology.

Ms. Johnson holds a master's degree in public health from the University of Virginia and a B.A. in sociology and music from the University of Richmond.

Authored by Beth Johnson, M.P.H.

Program

Community Health Peer Learning Program

From June 2015 to July 2017, the Community Health Peer Learning (CHP) Program built community capacity to advance progress toward population health improvements through the expanded capture, sharing, and use of electronic health data from diverse sectors.

In partnership with the Office of the National Coordinator for Health Information Technology, AcademyHealth’s Community Health Peer Learning (CHP) Program engaged 15 communities in a peer learning collaborative to identify data solutions, accelerate local progress, and disseminate best practices and lessons learned.

Collaborating with NORC at the University of Chicago, and the National Partnership for Women & Families, and with guidance from Key Advisors, the CHP Program helped participating communities to inform national strategy and align with other delivery system reform efforts driving toward better care, smarter spending, and healthier people.

The communities are profiled here, and a full list of CHP products is below; notable resources include:

For the Field

Toward Data-Driven, Cross-Sector, and Community-Led Transformation: An Environmental Scan of Select Programs
A scan of 17 national and regional programs supporting local and cross-sector collaborations focused on population health improvement at the community level.

"Notes from the Field" Blog Series
This collection of blog posts catalogue milestones in AcademyHealth’s Community Health Peer Learning Program as well as lessons learned along the way from a broad swath of community-led data sharing initiatives to improve population health.

For Communities

Community Profiles
The 15 CHP communities worked to link critical information from within and outside of health care to address challenges ranging from pediatric asthma to at-risk individuals facing housing insecurity.

Community Learning Guide Series
This learning guide series highlights practical experiences, key lessons, and insights from five communities about addressing population health management challenges through improved capture, sharing, and use of electronic health data.

Community Bright Spots Series
This series of profiles highlights useful insights from three communities all working to advance progress toward population health improvements through the expanded capture, sharing, and use of electronic health data from diverse sectors.

Ongoing Work

AcademyHealth continues to support this work through another learning collaborative called All In: Data for Community Health. Learn more about All In’s efforts to support and accelerate data-driven, community-led, and cross-sector collaboration – and get involved here.

Program

The National Interoperability Collaborative

The National Interoperability Collaborative is a new initiative designed to increase collaboration among the sectors that impact health and well-being by improving information-sharing, interoperability, and use of technology.

Stewards of Change Institute (SOCI) and AcademyHealth re using $1.2 million in seed funding from the Kresge Foundation to create a “community of networks” that brings broad benefits, particularly for at-risk and underserved members of society.

Building on existing networks, NIC:

  • Convenes key stakeholders, in person and virtually, to share information and provide feedback.
  • Identifies best practices through an environmental scan of interoperability guidance and toolkits.
  • Develops core measures and builds evidence to describe successful interoperability initiatives.
  • Provides case studies and technical assistance on health crises such as the opioid epidemic.
  • Offers SOCI’s InterOptimability Training Curriculum and Certification (ITCC) program.
  • Disseminates information and recommendations, including through an online community portal.

NIC’s inaugural partners are the California Health and Human Services Agency; the Connecticut Department of Social Services; the Virginia Department of Health and Human Resources; and the Healthcare Information and Management Systems Society (HIMSS). SOCI and AcademyHealth are engaging those working on interoperability issues from across sectors including health, human services, education, criminal justice, and child welfare, among others that impact health.

For more information on how to get involved, email the team at [email protected].

 

Program

Electronic Data Methods Forum

AcademyHealth is home to the Electronic Data Methods (EDM) Forum, a community of more than 4,000 stakeholders, 400 resources and more than 35 collaborative projects all aimed at improving the use of health data to transform health care.

More than 4,000 stakeholders engaged in the EDM Forum through participation in national meetings, workshops, webinars, peer review, and social media platforms. These efforts are documented in more than 400 reports and resources over the course of the project, which was supported by a collaborative agreement from the Agency for Healthcare Research and Quality from 2010-2016.

Notable projects include the national meeting, Concordium; work on the 'portable consent' process implemented as part of Apple's Research Kit apps; and new approaches to develop and test electronic clinical quality measures and improve the interoperability of advanced care planning documents.

In addition, the peer-reviewed open access journal, eGEMs was founded by the EDM Forum and now continues to publish innovative manuscripts that address the use of electronic health data in learning health systems. Highlighted publications and resources are below and additional resources can be accessed by searing EDM Forum in the website search bar.

Sponsor/Funder/Partner 

Agency for Healthcare Research and Quality

Past Events

Meetings

  • Concordium 2016: Data and Knowledge Transforming Health
    September 12-13, 2016, Crystal City, VA
    Building on the success of Concordium 2015, this year’s conference will brought together individuals and organizations working with health data to integrate evidence, practice, and policy in the delivery system setting. With discussion-based, innovative session formats, the conference is designed to be a transdisciplinary convergence of individuals designing and executing strategies for delivery system transformation.
     
  • Using Health IT to Advance the Use of Patient-Reported Outcomes in Practice
    May 23, 2016, Washington, DC
     
  • Concordium 2015: Data and Knowledge Transforming Health
    September 21-22, 2015, Washington DC
    Concordium 2015 brought together individuals and organizations working with big health data to integrate evidence, practice, and policy in the delivery system setting.
     
  • June 2014: Stakeholder Symposium
    June 7, 2014, San Diego
    The 2014 Symposium featured scientific experts, delivery system and policy leaders, and innovators who are building learning health systems of the future.
     
  • June 2013: Stakeholder Symposium
    June 22, 2013, Baltimore, MD
    Presentations focused on progress-to-date for building learning health systems to improve patient outcomes, as well as challenges and future research priorities for comparative effectiveness research (CER), patient-centered outcomes research (PCOR), and quality improvement (QI). The purpose of this meeting was to bring together experts to review the current state of PROs in clinical practice and opportunities to leverage health IT for their more effective use. Participants deliberated opportunities to make the most effective use of PROs in the care process and discuss the remaining barriers to their effective integration into clinical workflows, prioritized areas for potential investment to scale and spread the effective use of PRO tools in practice, particularly in primary and ambulatory care and for individuals with multiple chronic conditions. Discussion was also centered on the use of PROs from the patient perspective and using PROs to improve patient-centered care.

Reports & Publications

  • Holve, Erin (2016) "Open Science and eGEMs: Our Role in Supporting a Culture of Collaboration in Learning Health Systems," eGEMs (Generating Evidence & Methods to improve patient outcomes): Vol. 4: Iss. 1, Article 12.
    “Open science” includes a variety of approaches to facilitate greater access to data and the information produced by processes of scientific inquiry. Recently, the health sciences community has been grappling with the issue of potential pathways and models to achieve the goals of open science—namely, to create and rapidly share reproducible health research. eGEMs’ continued dedication to and milestones regarding the publication of innovative, useful, and timely research to help contribute to the push towards open science is discussed, as well as the EDM Forum’s new data sharing platform, CIELO. Although strides have been made, there is still more work to be done to help health sciences community truly embrace open science.
  • D. Lavallee, K. Chenok, R. Love, C. Petersen, E. Holve, C. Segal, P. Franklin. “Incorporating Patient-Reported Outcomes Into Health Care To Engage Patients And Enhance Care” Health Affairs, Vol 35 No 4. April 2016
    The provision of patient-centered care requires a health care environment that fosters engagement between patients and their health care team. One way to encourage patient-centered care is to incorporate patient-reported outcomes into clinical settings. Collecting these outcomes in routine care ensures that important information only the patient can provide is captured. This provides insights into patients' experiences of symptoms, quality of life, and functioning; values and preferences; and goals for health care. Previously embraced in the research realm, patient-reported outcomes have started to play a role in successful shared decision making, which can enhance the safe and effective delivery of health care. We examine the opportunities for using patient-reported outcomes to enhance care delivery and outcomes as health care information needs and technology platforms change. We highlight emerging practices in which patient-reported outcomes provide value to patients and clinicians and improve care delivery. Finally, we examine present and future challenges to maximizing the use of patient-reported outcomes in the clinic.
     
  • EDM Forum, "EDM Forum Review" (2015, October). Washington, D.C.
    The 2015 EDM Forum Review focuses on a new innovation imperative for health data and knowledge to drive system improvement. The inaugural edition highlights key investments and initiatives that are promoting this evidence-based system transformation, including: significant support from the public and private sectors investing in EHD infrastructure and science; adoption of EHRs; patient engagement and a growing marketplace for mobile health technology; and new goals for value-based payment to ensure quality rather than volume. The results of an extensive literature review, including PCOR findings based on electronic health data, are provided.

Training & Resources
 

Public Webinars

Related Links